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Samantha's story - moving on with arthritis

Sam at Camp Footloose, 2006Moving On - By Samantha Bell

Most of you would know me from Camp Footloose, firstly as a lazy camper and secondly as a junior leader. If you don’t know me then here’s a little story of moving on for you.

Although my transition from what is classified as childhood, being high school and everything related, to the world of the adult is not yet completed, I have experienced some major mile stones and have achieved so many things I’ve set out to achieve. I’ve also come face to face with barriers which stood between me and my goals.

When I was growing up, all I wanted to be was an actress and a singer. An entertainer that would take the world be storm. Performing in sold out venues with thousands of screaming fans, all whilst my latest movies were being promoted. Of course, dreams like this never come easy, such dreams never do. With my eye on this goal, taking steps towards it started long before I finished school.

In my senior years of high school, I was involved with a musical society, earning two leading roles. Whilst engaged with this, I attended NIDA (National Institute of Dramatic Arts) courses and was offered a scholarship. Along with this education, I was also trained vocally by two incredible industry legends. All these were simply steps towards my dream.

For so many years I had planned to go to NIDA to study acting for a full 3 years, after which time nothing could possibly stand in my way of becoming a world class actress. But there was something standing in my way. Health.

Like you, I have Arthritis, and while the pain is bearable for me, it still impacts me and restricts the paths I choose to take. I soon discovered that, physically I would never be able to complete the required study which is intensely movement oriented. Further still, even if my health would have allowed me, NIDA wouldn’t have. Not only do I have JR Arthritis, I also have a jaw structure issue. While it isn’t noticeable to the uninformed eye, a professional in the industry of beauty would quickly notice it and my application would be thrown out. Needless to say I was shattered.

My discovery came one afternoon in my vocal coach’s studio in the early part of my final year of high school and as devastating blow as it was, I was so relieved that I had time to reconsider my plan of action.

I swiftly began making preparations to ‘break’ my barriers. I began seeing a Oral and Maxillo-Facial Surgeon who immediately began taking measures to correct my structural fault. As for the Arthritis, I joined the gym, I didn’t do much there, however it did make me feel healthier. I found that when I felt healthy it helped my body battle the disease more efficiently. With my body and health under control I looked towards my education. University quickly arose as the best option. Abandoning my dream of becoming one of NIDA’s perfect actors was difficult and I resented uni for being my second choice. Over time, priorities change and the importance of different aspects in your life shifts.

Someone once said to me, “If there is one thing about you, it’s that you don’t give up. You always find a way to make things happen, that’s just the way you are”. While not everyone shares that opinion of me, it is true. I began looking at my situation and starting thinking, ‘how can I achieve what I need to achieve?’ In time, I discovered that being a world famous actress was more about the fame than the art, and I didn’t want to be a fame driven ‘artist’. Suddenly, university wasn’t a bad idea. One of the huge attractions was that after completing a degree at a reputable university, a stable income is more likely than the turbulent life that is show biz. On top of that, I would be able to look at the theatre and world of acting in a different, yet just as valid way, opposed to how I would approach it if I were a student of NIDA. So after much research, a bachelor of Arts emerged a clear path that I was more than enthused to take.

Finishing school was a stressful, yet relieving and highly rewarding time. Exams went off well for me. I was pretty prepared, so studying wasn’t a big stress. I think that when you study regularly through the year in small doses it takes a huge weight off your final preparations. After exams, we all looked forward to our formal which was so great! Finding shoes that didn’t hurt and make my knee sore was a big deal. So for photos I wore a pair of shoes that hurt like hell but were good looking and bought highly comfortable ball room dancing shoes that I wore inside the venue all night. My feet were so happy. Any girl who has a formal on this year, get yourself some ball room dancing shoes - expensive, but comfortable.

After school was over and the hype of Schoolies spent with two other Arthritis camp buddies, Ashlea and Aaron and my boyfriend, Samuel, on board the Schoolies Cruise; the quest for satisfying my ambitions continued. I had applied through UAC for uni and when first round offers came around I was so nervous. I could barely sleep, I wasn’t hungry, all I thought about was whether or not I would get into uni. So you can imagine my disappointment when I didn’t receive an offer. I was devastated. I felt like a failure. I had so many plans based on getting into Uni. It was a hard blow. But when I received my offer in the second round for a Bachelor of Arts and Sciences at the University of Sydney, majoring in Performance Studies, I fell into an immediate state of fear and shock. After crying on my partners shoulder I calmed down and I realised I’d just completed a goal. I had conquered a barrier and I had succeeded. I had gained entry into one of the best universities in the country and I had taken a step towards the world of performance.

How did it feel?

Scary. I’ve never been more scared in my life. But it is so exciting to know that I set out to achieve something, and I achieved it in a way which exceeded my expectations. Having so many things stand in my way and conquering them is a great feeling of empowerment. NIDA may still be in my future. But coming to terms with the restrictions placed on me and finding a way to compliment the Arthritis has proven to be a much more satisfying experience. It’s ok to be scared of moving on, the main thing is taking that leap of faith.

What makes life easier? The people around you. I have had so many people come and go in my life. Few stay for the long haul. I have my family and my boyfriend, who have always believed in me. But I have some other people too. People who I think have picked me up time and time again, and made me feel compelled to try harder, be more patient and not give up. The friends I made at Arthritis Camp six years ago have stayed with me. Every camper and ever leader have brightened my life in ways that I will forever be grateful. Three incredible people, who’s friendship has extended so much further than the title of Camp Footloose. Ashlea, Aaron and Mitch have never let me down and have continued to support me all these year. Us Arthritis kids are a special breed, and not because of our disability. I think having restrictions on us drives us to be stronger willed and empowers us to succeed against all odds. That’s what we do. It’s in our nature.

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