Camp Twinkletoes

About Camp Twinkletoes

Camp Twinkletoes is an annual event designed to help families caring for young children with juvenile arthritis. The program has four essential elements:

  • Education for parents – talks by health professionals such as paediatric rheumatologist, clinical psychologist and paediatric nurse
  • For the child with juvenile arthritis – age appropriate mix of self management strategies and fun activities
  • Opportunity for whole family bonding
  • Experience-sharing between families

For a family with a newly diagnosed child, the future is uncertain. Camp Twinkletoes supports families to adapt to this uncertainty and build the mental strength to care for their children in the most positive way possible.

Who is Camp Twinkletoes for?

  • Children with juvenile arthritis 9 years old & under, accompanied by a parent or carer.
  • Family members, siblings, extended family and close friends are also welcome.

Camp Twinkletoes 2019

Dates: 4-5 May 2019 (Main program is on the 4 May, it is your choice if you would like to stay overnight)
Venue: Naamaroo Uniting Venues, Lady Game Drive, Chatswood

The Program
Based on learning about the impact of JIA conducted in 2018, the program centres around education in 3 primary areas – physical, social and emotional.

Parent Program

The parent program will include talks from:

  • Paediatric rheumatologist – physical/medical management of the condition
  • Paediatric Clinical Consultant Nurse – a discussion and group based workshop on creating environments that foster a child’s confidence to express themselves about their condition at school or with peers
  • Clinical psychologist – understanding pain, anxiety and mindfulness
  • Potential Fourth speaker – to be confirmed

There will also be ample opportunity for Q&As during each session and families will be encouraged to share their experiences.

Children Program

  • Crazy Critters Experience – Aussie animal encounter
  • Yoga & stretching session
  • Expressive art & craft
  • Opportunity to interact with older children with JIA who will be volunteering

Registration Deadline: 12 April 2019

As places at Camp are strictly limited we encourage you to submit your application form as soon as possible.

Application Form

For a copy of the 2019 application form, please click here

Camp Twinkletoes 2019 Expression of Interest

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More information about our Camps for Kids

If you have any questions about attending Camp Twinkletoes, please contact our Camp Coordinator on 02 9857 3300.

Beth & Carter’s experience with Camp Twinkletoes

Carter was diagnosed with juvenile arthritis when he was just four years old. Beth, his mum, tells us about her experience and how Camp Twinkletoes has helped her and Carter. Click on the image below to hear their story.

Details from Camp Twinkletoes April 2018

Camp Twinkletoes 2018 was held over the weekend of 13-15 April 2018 at Drummond House Accommodation, Royal Far West (RFW), in Manly (Sydney). It was a great success, with very positive feedback from all the families involved.

Program Overview:

  • The theme for Camp Twinkletoes 2018 was “Resilience and Wellbeing.”
  • Speakers included Anne Senner RN MS – Paediatric Rheumatology CNC; Occupational Therapist, Mandy Hanna; and Clinical Psychologist, Dr Goodison-Farnsworth.
  • Topics included:
    • Orientation to juvenile arthritis – its forms, affects and treatment;
    • Preparing children for medical procedures;
    • Recognising the signs of  – and managing – stress associated with persistent pain in young children;
    • Practical solutions for children at preschool / school – plus navigating the school system
  • Activities for the children included a musical workshop, relaxation exercises, and free play involving supervised craft.
  • The program opened on the Friday evening with an informal discussion lead by our Health Services team. The education sessions for parents / carers were held throughout the day on Saturday, while the children were supervised in their activities.

Memories from Camp Twinkletoes 2018

READ OUR BLOG for more about Camp Twinkletoes 2018 and share your appreciation for our supporters who generously donated gift vouchers and products for the parents, carers and children attending Camp.

Contact

If you have any questions about attending Camp Twinkletoes, please contact our Camp Coordinator on 02 9857 3300.

If you are interested in being a volunteer at Camp Twinkletoes, please contact our Volunteer Coordinator on 02 9857 3300.

To discuss opportunities to sponsor our camps for children, please contact our Business Development Manager on 02 9857 3300.

Photos from Camp Twinkletoes, April 2018

Below is a selection of photos from the 2018